Day 9

Prayers worked!! No fever, but I should have asked everyone to pray for no pain. Luie actually had pain caused by gas. A lot of it. Neither of us got much sleep. We finally figured out what helped. Luie had to sleep almost sitting up. He started feeling better almost instantly. At about 4am, we slept until about 10. Even though the night pretty much sucked, today was a pretty good day. I was a bit worried that it would not be good because they lowered Luie's meds again by half from 40 to 20, but he barely used it today. Then Luisito walked 3 times today once with me, his cousins and his dad, other mom and grandma. Since the hospital lifted the under 18 yo restriction and Luie's cousins Marissa, Mario and Meagan plus his Titi Sandra and Tio Louie came to visit today. They played bingo and Apples to Apples in the Brown Life center. Luie did really well. We came back to the room, and shortly after Lu appeared with Cherie to surprise Luie. Margie, his grandma, came later and we went for a little walk again. He had some gas pain but we worked it out. Tylenol seems to help with the pain. I thought here we go again, but he seems to be ok. He doesn't want to go to sleep now. For the good news. Initially that plan was for us to go home by today. Well because of the stuff in his stomach coming out too dark, among other things, it prolonged our time here. We were really scared that we would be here for Christmas. I maintain my faith that God will have us home. The surgeon told us the stomach fluids are much clearer and they might remove the tube from his nose tomorrow and start him clear liquids. Then Wednesday they will start him on food and if God's willing we go home for Christmas Eve. He will spend it with his dad, Cherie, Joey and Molly and not in the hospital.
So tonight I pray for no pain, clearer stomach fluids, sleep and home by Christmas Eve.